Evidence
Psychol Health Med. 2024 May 2:1-10. doi: 10.1080/13548506.2024.2348820. Online ahead of print.
ABSTRACT
Advancements in early diagnosis and paediatric cardiac surgery have improved the long-term survival of patients with congenital heart disease, necessitating a thorough assessment of their health-related quality of life (HRQoL). This study aimed to assess HRQoL in paediatric patients with coarctation of the aorta (CoA) (both as reported by patients and caregivers), and to evaluate associated factors. Patients aged 5-18 years diagnosed with CoA and their parents were enrolled at Bambino Gesù Children’s Hospital between September 2016 and December 2017. Socio-demographic characteristics were recorded using a family form, and the Pediatric Quality of Life Inventory (PedsQL) 3.0 cardiac module was used to evaluate HRQoL. Clinical data were retrieved from medical chart reviews. In this observational study, sixty-five pediatric patients (39 males, median [IQR] age 12 [9-14]) with CoA and their parents (65 mothers and 65 fathers) were enrolled. These patients exhibited overall good HRQoL. Mothers reported significantly lower total HRQoL scores compared to patient self-reports (p = .037), as well as treatment anxiety (p = .033), and cognitive problems (p = .021). Pediatric patients with CoA perceived their HRQoL better than their mothers did. Female sex and older age were associated with lower HRQoL scores.
PMID:38695164 | DOI:10.1080/13548506.2024.2348820
Add to Google Keep
Estimated reading time: 4 minute(s)
Latest: Psychiatryai.com #RAISR4D
Cool Evidence: Engaging Young People and Students in Real-World Evidence ☀️
Real-Time Evidence Search [Psychiatry]
AI Research [Andisearch.com]
Health-related quality of life among paediatric patients with coarctation of the aorta: an observational study
🌐 90 Days
VR Related Evidence Matrix
- Health-related quality of life and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China
- The health-related quality of life of early-onset colorectal cancer patients: an Australian cross-sectional study
- Self-reported health related quality of life in children and adolescents with an eating disorder
- Changing practice to improve quality of life in glioma
- Self-reported health related quality of life in children and adolescents with an eating disorder
- Health-related quality of life in patients with generalized pustular psoriasis - a Swedish register study
- Longitudinal impact of intracerebral low-grade glioma disease on health-related quality of life
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Association of Pulmonary Function Test Abnormalities and Quality-of-Life Measures after COVID-19 Infection
- Factors associated with health-related quality of life on mental and oral health in patients with cancer and cancer survivors using the Korea National Health and Nutrition Examination Survey (2005-2018)
- Epidemiology of violence against young children in Jamaica
- Impact of treatment adherence and inhalation technique on asthma outcomes of pediatric patients: a longitudinal study
- The effect of antipsychotic medications on QTc and delirium in paediatric cardiac patients with ICU delirium
- Post-intensive care syndrome and health-related quality of life in long-term survivors of cardiac arrest: a prospective cohort study
- A psychometric investigation of health-related quality of life measures for paediatric neurodevelopment assessment: Reliability and concurrent validity of the PEDS-QL, CHU-9D, and the EQ-5D-Y
- Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
- Diagnostic features of paediatric catatonia: multisite retrospective cohort study
- Significance Analysis of the Improvement in Postoperative Recovery of Cardiac Surgery Patients Based on the Graded Management Established Using the Delirium Prediction Model
- Effect of on-demand vs continuous prescription of proton pump inhibitors on symptom burden and quality of life: results of a real-world randomized controlled trial in primary care patients with gastroesophageal reflux disease
- Health-related quality of life in non-alcoholic fatty liver disease: A cross-cultural study between Spain and the United Kingdom
- Investigation of Health-Related Quality of Life, Anxiety and Satisfaction in Patients with Pulmonary Embolism
- Nasogastric tube feeding under physical restraint of children and young people with mental disorders: a comprehensive audit and case series across paediatric wards in England
- Nursing experiences and knowledge of paediatric delirium: Analysing knowledge-practice gaps
- Determining the Short-term Effects of Smoking Cessation Using Nicotine Gum on Oral Health-Related Quality of Life: A Pilot Study
- Effect of diabetes self-management education on health-related quality of life of Tunisian children with type1 diabetes mellitus and their parents: A randomized controlled trial
- Clinical and patient-reported outcomes in patients with chronic hepatitis B and C and non-alcoholic fatty liver disease from real-world practices in Saudi Arabia, Turkey and Egypt
- Clinical and patient-reported outcomes in patients with chronic hepatitis B and C and non-alcoholic fatty liver disease from real-world practices in Saudi Arabia, Turkey and Egypt
- Psychological assessment of patients on the heart transplant waiting list: A single center experience
- Psychological assessment of patients on the heart transplant waiting list: A single center experience
- Clinical illness course and family-related outcomes among parents with a first episode of schizophrenia spectrum disorder: a 20-year follow-up of the OPUS trial
- Examining nurses' death anxiety and attitudes toward caring for dying patients: a cross-sectional study in Turkey
- Predictors of psychosocial adaptation in children with CHD
- Long-term Health-related Quality of Life in Working-age COVID-19 Survivors: A Cross-sectional Study
- Quality of Life and Clinical Impairment in Spanish Adolescent Anorexia Nervosa Patients
- Predictors of health-related quality of life for children with neurodevelopmental conditions
- A Systematic Review of Methods and Practice for Integrating Maternal, Fetal, and Child Health Outcomes, and Family Spillover Effects into Cost-Utility Analyses
- Health-related quality of life after minimal-invasive treatment of aortic valve stenosis in the elderly
- Association of dexmedetomidine use with haemodynamics, postoperative recovery, and cost in paediatric anaesthesia: a hospital registry study
- Long-term clinical observation of patients with heterozygous KIF1A variants
- EEG findings and clinical severity and quality of life in non-epileptic patients with autism spectrum disorders
- Multilevel Characteristics of Cumulative Symptom Burden in Young Survivors of Childhood Cancer
- Differences in treatment trajectory following brief paediatric inpatient admissions for children and young people with eating disorders
- Impact of Anxiety, Depression, and Coping Strategies on Health-Related Quality of Life in Patients with Cystic Fibrosis
- Perceived family-centered care and post-traumatic stress in parents of infants cared for in the paediatric cardiac intensive care unit
- Non-suicidal self-injury at a Canadian paediatric emergency department
- Effectiveness of psychoeducational interventions on psychological distress and health-related quality of life among patients with maintenance hemodialysis: a systematic review and meta-analysis
- Longitudinal association of health behaviors and health-related quality of life with military spouse readiness
- Assessment of mental health and quality of life among children with congenital heart disease
- Impact of COVID-19 pandemic on prescription of psychotropic medications in the Italian paediatric population during 2020
- Impact of Aerobic High-Intensity Interval Training Intervention and Mediterranean Diet Recommendations on Health-Related Quality of Life and Lifestyle Modification in Post-Myocardial Infarction Patients: Results From the INTERFARCT Surveys
- The Relationship Between Fatigue and Quality of Life in the Turkish Mothers of Children with Autism Spectrum Disorder
- Health-related quality of life and its predictors among hypertensive patients on follow up at public hospitals in Addis Ababa, Ethiopia: application of Tobit regression model
- Financial difficulties experienced by patients with gastrointestinal stromal tumours (GIST) in the Netherlands: data from a cross-sectional multicentre study
- Association of depressive symptom severity and suicidal ideation with health-related quality of life among stroke survivors, NHANES 2005-2018
- Mental health-related service and medicine use among a cohort of urban Aboriginal children and young people: Data linkage study
- Clinical and cardiac MRI characteristics: prognosis in patients with alcoholic cardiomyopathy
- Telephone follow-up based on empowerment theory to improve resilience and quality of life among patients after coronary artery stent implantation: a randomized controlled trial
- Post-COVID anxiety, depression, and quality of life among Egyptian hemodialysis patients
- Patterns of Health-related Quality of Life in Men Who Inject Drugs: A Survey in Southeast Iran
- Patterns of Health-related Quality of Life in Men Who Inject Drugs: A Survey in Southeast Iran
- Efficacy of resilience-related psychological interventions in patients with long-term diseases: A meta-analysis of randomised controlled trials
- Congenital myasthenic syndromes in adults: clinical features, diagnosis and long-term prognosis
Evidence Blueprint
Health-related quality of life among paediatric patients with coarctation of the aorta: an observational study
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
Health-related quality of life among paediatric patients with coarctation of the aorta: an observational study
🌐 365 Days
VR Related Evidence Matrix
- Clinical and Sociodemographic Factors Associated With Health-Related Quality of Life in Patients With Adult Congenital Heart Disease - A Nationwide Cross-Sectional Multicenter Study
- Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey
- Health-related quality of life and its determinants during and after treatment for paediatric acute lymphoblastic leukaemia: a national, prospective, longitudinal study in the Netherlands
- Health-related quality of life with standard and curative therapies in thalassemia: A narrative literature review
- Health-related quality of life and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China
- Characteristics Predicting Short-Term and Long-Term Health-Related Quality of Life in Patients with Esophageal Cancer After Neoadjuvant Chemoradiotherapy and Esophagectomy
- The health-related quality of life of early-onset colorectal cancer patients: an Australian cross-sectional study
- Self-reported health related quality of life in children and adolescents with an eating disorder
- Quality of Life and Health-related Quality of Life in Patients with End-stage Kidney Disease Undergoing Hemodialysis: A Literature Review
- Changing practice to improve quality of life in glioma
- Habitual Sleep Duration and Health-Related Quality of Life in Family Caregivers: Findings from the Behavioral Risk Factor Surveillance System
- Parent-Reported Health-Related Quality of Life Outcomes and Impact on Family of Congenital Diaphragmatic Hernia Survivors After Repair: A Cross-Sectional Comparison to Healthy Controls
- Exploring Sleep in Caregivers of Children with Autism Spectrum Disorder (ASD) and the Relationship to Health-Related Quality of Life (HRQoL) and Family Quality of Life (FQoL)
- Predicting physical activity and quality of life in coronary heart disease patients: An 18-month path analysis of motivational and emotional factors
- Health-Related Quality of Life Among Patients With Stroke: A Cross-Sectional Study
- Differential associations of sex and age with changes in HRQoL during outpatient cardiac rehabilitation
- Self-reported health related quality of life in children and adolescents with an eating disorder
- Assessing health-related quality of life among cancer survivors during systemic and radiation therapy in Bangladesh: a cancer-specific exploration
- Screening for health-related quality of life and its determinants in Fabry disease: A cross-sectional multicenter study
- Health-related quality of life in family caregivers of autistic adults
- Health-related quality of life and fatigue in adult rare bone disease patients: A cross-sectional study from Austria
- Health-related quality of life in patients with generalized pustular psoriasis - a Swedish register study
- Long-term patient-reported outcomes after reconstructive surgery for head and neck cancer: A systematic review
- Parental communication satisfaction with the clinical team in the paediatric cardiac ICU
- Association between pulse width and health-related quality of life after electroconvulsive therapy in patients with unipolar or bipolar depression: an observational register-based study
- Health-related quality of life in patients discharged from hospital after suicide attempt with violent methods compared to self-poisonings
- Child and family health-related quality of life and participation outcomes and goals after acquired brain injury: a cross-sectional survey
- The association between sleep quality and obstructive sleep apnea with health-related quality of life in children with obesity
- More positive patient-reported outcomes in patients newly diagnosed with atrial fibrillation - a comparative longitudinal study
- Heart disease symptoms and health-related quality of life in pediatric heart transplant recipients: A serial multiple mediator analysis
- Are disease-specific patient-reported outcomes measures (PROMs) used in cardiogenetics? A systematic review
- Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey
- Anxiety is Associated With Geriatric Assessment Impairments and Reduced Quality of Life Among Older Adults With Colorectal Cancer: Results From the CARE Registry
- The challenges of classical galactosemia: HRQoL in pediatric and adult patients
- Assessing health-related quality of life of people with diabetes in Nigeria using the EQ-5D-5L: a cross-sectional study
- Longitudinal impact of intracerebral low-grade glioma disease on health-related quality of life
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Adverse drug reactions in paediatric surgery: prospective study on frequency and risk related factors
- Assessment of health-related quality of life among patients with obesity, hypertension and type 2 diabetes mellitus and its relationship with multimorbidity
- Comparing the Psychometric Performance of Generic Paediatric Health-Related Quality of Life Instruments in Children and Adolescents with ADHD, Anxiety and/or Depression
- Do pre-transplant cultural factors predict health-related quality of life after kidney transplantation?
- Dietary fiber intake is positively associated with health-related quality of life in patients with hypertension: The mediating role of anxiety in mental component summary
- EXPRESS: Long-term outcomes, residual symptoms and quality of life in COVID-19 hospitalized patients: a 12-month longitudinal study
- Association of Pulmonary Function Test Abnormalities and Quality-of-Life Measures after COVID-19 Infection
- International validation of a health-related quality of life questionnaire for Hodgkin Lymphoma: the EORTC QLQ-HL27
- Determinants of quality of life in family caregivers in MCI: a comparison with mild dementia
- Gender and Sex Differences in Health-related Quality of Life, Clinical Outcomes and Survival after Treatment of Metastatic Spine Disease
- Factors associated with health-related quality of life on mental and oral health in patients with cancer and cancer survivors using the Korea National Health and Nutrition Examination Survey (2005-2018)
- Epidemiology of violence against young children in Jamaica
- Association between medication adherence and health-related quality of life of patients with hypertension and dyslipidemia
- The Association Between Religious Belief and Postoperative Psychological Status and Quality of Life of Parents of Children with Congenital Heart Disease: A Single Center Experience in Southeast China
- Relationship between physical and psychological functioning and health-related quality of life in congenital Aniridia
- Impact of treatment adherence and inhalation technique on asthma outcomes of pediatric patients: a longitudinal study
- The effect of antipsychotic medications on QTc and delirium in paediatric cardiac patients with ICU delirium
- Auditory complications among childhood cancer survivors and health-related quality of life: a PanCareLIFE study
- Post-intensive care syndrome and health-related quality of life in long-term survivors of cardiac arrest: a prospective cohort study
- Health-related quality of life and radiological and functional lung changes of patients with COVID-19 Pneumonia 3 and 10 months after discharge
- A psychometric investigation of health-related quality of life measures for paediatric neurodevelopment assessment: Reliability and concurrent validity of the PEDS-QL, CHU-9D, and the EQ-5D-Y
- Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
- Diagnostic features of paediatric catatonia: multisite retrospective cohort study
- Long-Term Quality of Life After Out-of-Hospital Cardiac Arrest
- Patient, parent and carer perspectives surrounding expedited paediatric epilepsy surgery
- Significance Analysis of the Improvement in Postoperative Recovery of Cardiac Surgery Patients Based on the Graded Management Established Using the Delirium Prediction Model