Evidence
BMJ Open. 2024 Apr 8;14(4):e081364. doi: 10.1136/bmjopen-2023-081364.
ABSTRACT
OBJECTIVES: This study aims to understand the caregiving experiences of family caregivers of people with schizophrenia in a community.
DESIGN: A qualitative study based on phenomenological analysis was conducted through in-depth interviews.
SETTING: This study was carried out from May to June 2023 in two community health service centres in urban Beijing, China.
PARTICIPANTS: We selected 16 family caregivers for interviews using purposive sampling method.
RESULTS: Four themes and 10 subthemes were identified: (1) psychosocial distress of family caregivers (feeling unprepared and helpless at the beginning, confronting negative emotions in long-term care and straying away from social life); (2) adverse impacts on the whole family (poor cooperation within the family, insufficient family involvement in professional care); (3) coping with family caregiving (accepting the reality of the patients’ illness, struggling with family life balance and having realistic expectations); (4) concerns about future care (daily living support, physical health management).
CONCLUSION: Family caregivers experienced psychosocial distress and family stress in the process of caregiving. They had to cope with caregiving stress and were concerned about the long-term care of people with schizophrenia. These findings provide implications for intervention programmes to strengthen social support, family involvement, and active coping for caregivers and develop long-term care mechanisms for people with schizophrenia.
PMID:38589261 | DOI:10.1136/bmjopen-2023-081364
Estimated reading time: 4 minute(s)
Latest: Psychiatryai.com #RAISR4D Evidence
Cool Evidence: Engaging Young People and Students in Real-World Evidence
Real-Time Evidence Search [Psychiatry]
AI Research
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
🌐 90 Days
AI Virtual Reality Related Evidence Matrix
- Development of family resource indicators for people with schizophrenic disorder in community by modified Delphi method in Beijing, China
- Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives
- Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study
- Care for the cerebrovascular accident survivors: experiences of family caregivers
- Impact of the COVID-19 Pandemic on Latino Families With Alzheimer Disease and Related Dementias: Qualitative Interviews With Family Caregivers and Primary Care Providers
- A window into the reality of families living long term with challenging behaviours after a TBI
- A window into the reality of families living long term with challenging behaviours after a TBI
- COVID-19 experience of people with severe mental health conditions and families in South Africa
- Effectiveness of a health education program for people with dementia and their family caregivers: An intervention by nurse practitioners
- Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention
- Perspectives on dementia care self-learning platform: A focus group study of family and professional caregivers
- Exploring the perceptions and experiences of community rehabilitation for Long COVID from the perspectives of Scottish general practitioners' and people living with Long COVID: a qualitative study
- The role of the social environment on dementia caregivers' pre-death grief: A mixed- methods systematic review
- Double-duty caregivers enduring COVID-19 pandemic to endemic: "It's just wearing me down"
- Access to primary care for children and young people (CYP) in the UK: a scoping review of CYP's, caregivers' and healthcare professionals' views and experiences of facilitators and barriers
- Profiles of psychological flexibility and caregiving experience in dementia family caregivers: A latent profile analysis
- Moving forward with dementia: an explorative cross-country qualitative study into post-diagnostic experiences
- A qualitative assessment of provider-perceived barriers to implementing family-based treatment for anorexia nervosa in low-income community settings
- Exploring the associations between competence in dementia care and work attitudes among formal caregivers in nursing homes
- Adapting a Dutch Web-Based Intervention to Support Family Caregivers of People With Dementia in the UK Context: Accelerated Experience-Based Co-Design
- Shanghai Community-Based Schizophrenia Cohort (SCS): a protocol for establishing a longitudinal cohort and research database of patients with schizophrenia receiving community-based mental health treatment
- Service Provider Perspectives on Advance Care Planning Use in Rural Dementia Patients and Caregivers: A Qualitative Study
- Death education interventions for people with advanced diseases and/or their family caregivers: A scoping review
- Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study
- Effectiveness of a family empowerment program on caregiving capacity and adverse mood in caregivers of children with acute leukemia: a quasi-experimental study
- Affiliate stigma and its association with family burden among family members of people living with schizophrenia in China
- Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia
- Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia
- Opportunities and Challenges for Augmented Reality in Family Caregiving: Qualitative Video Elicitation Study
- Experiences of Parental Caregivers of Adults with Autism in Navigating the World of Employment
- Cultural adaptation of an intervention for caregivers of young autistic children: Community members' perspectives
- Care training and family caregiver anxiety: prospective cohort study
- Impact of informal caregiving on depressive symptoms among a national cohort of men
- Impact of informal caregiving on depressive symptoms among a national cohort of men
- A randomised controlled trial of the Learning Skills Together (LST) intervention to improve dementia family caregivers' self-efficacy with complex care
- Qualitative study of the lived experience of methylphenidate prescribed for children with a fetal alcohol spectrum disorder
- Perspectives from persons living with dementia and their caregivers on emergency department visits, care transitions, and outpatient follow-up: A qualitative study
- Perceived Threat of Alzheimer's Disease and Related Dementias Among Chinese Family Caregivers of Older Adults with Cognitive Impairment
- Mentalising imagery therapy for family dementia caregivers: protocol for a scoping review
- What are the experiences and psychosocial needs of female survivors of domestic violence in Afghanistan? A qualitative interview study in three Afghan provinces
- Exploration of Latina/Hispanic women's experiences living with non-alcoholic fatty liver disease: a qualitative study with patients in Houston
- Exploring the experiences of mental health nurses in the management of schizophrenia in the Upper East Region of Ghana: a qualitative study
- Evaluation of ChatGPT's responses to information needs and information seeking of dementia patients
- Developing Social Enhancements for a Web-Based, Positive Emotion Intervention for Alzheimer Disease Caregivers: Qualitative Focus Group and Interview Study
- "We Followed their Lead": Exploring Relational Change and Support among Caregivers of Transgender and Gender Diverse Youth
- Preparing to "Live a Life of Possibilities": Experiences of Healthcare Providers Readying Autistic Adolescents and Their Families for Independent Driving
- Adherence to Online Interventions for Family Caregivers of People With Dementia: A Meta-Analysis and Systematic Review
- A picture of hope: From the perspective of adolescents with cancer-A phenomenological-visual qualitative study
- Longitudinal effects of ambivalent and guilt feelings on dementia family caregivers' depressive symptoms
- The Olera.care Digital Caregiving Assistance Platform for Dementia Caregivers: Preliminary Evaluation Study
- Emotion Regulation, Coping Strategies, and Hazardous Drinking Among Family Caregivers of People With Alzheimer's Disease and Related Dementias
- Patient and Caregiver Perceptions of an Interface Design to Communicate Artificial Intelligence-Based Prognosis for Patients With Advanced Solid Tumors
- Family support for children with learning disabilities to attain good academic performance: A qualitative study
- Family psychoeducation in schizophrenia and schizophrenia related disorder, treatment compliance, and suicidal risk reduction: questions about their relationship from a naturalistic observation
- Resilience and related factors in caregivers of adult cancer patients: a systematic review
- The Effect of Informal Caregiving on Depression: An Asymmetric Panel Fixed-Effects Analysis of In-Home and Out-Of-Home Caregivers Across Europe
- Victimisation in the life of persons with severe mental illness in Uganda: a pluralistic qualitative study
- Unmasking the Struggle: A Scoping Review Exploring Post-Traumatic Stress Symptoms in Caregivers of Individuals with Neurodevelopmental, Psychiatric and Neurocognitive Disorders
- Healthcare and social care professionals' experiences of respite care: a critical incident study
- 'Protecting your body and loving yourself': strategies Black male caregivers use to protect Black girls sexuality in the USA
- 'Protecting your body and loving yourself': strategies Black male caregivers use to protect Black girls sexuality in the USA
- The Depression Anxiety Stress Scale 8: investigating its cutoff scores in relevance to loneliness and burnout among dementia family caregivers
- Hope and psychological resilience in primary caregivers of patients with a chronic mental illness followed in a community mental health center
- Parenting and Gender as Impact Factors for Social Participation, Quality of Life, and Mental Health in Long COVID
Evidence Blueprint
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
🌐 365 Days
AI Virtual Reality Related Evidence Matrix
- Development of family resource indicators for people with schizophrenic disorder in community by modified Delphi method in Beijing, China
- Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives
- "A little bit different now": Impacts of caregiving for parent with cancer on psychosocial development in emerging and young adulthood
- "It shouldn't be like this": Family caregivers navigating insurance for family members with dementia
- Predictors of rewarded caregiving for family caregivers of person with dementia: A longitudinal study
- Tilting at Windmills - A Qualitative Study about Family Caregiver Interactions and Perceptions in Forensic Mental Health Care
- Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study
- Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review
- Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic
- Thematic analysis of challenges and needs of family caregivers of persons living with dementia: Planning for a digital platform to address financial, legal, and functional care
- Exploring access to community care and emergency department use among people with dementia: A qualitative interview study with people with dementia, and current and bereaved caregivers
- Care for the cerebrovascular accident survivors: experiences of family caregivers
- Experiences of the older spousal caregivers of patients with cancer during palliative chemotherapy: a qualitative descriptive study
- The caring experiences of family caregivers for patients with advanced cancer in Uganda: A qualitative study
- Thematic Analysis of Psychosocial Stressors and Adaptive Coping Strategies Among Informal Caregivers of Patients Surviving ICU Admission for Coma
- Impact of the COVID-19 Pandemic on Latino Families With Alzheimer Disease and Related Dementias: Qualitative Interviews With Family Caregivers and Primary Care Providers
- A Duty to Care: Male Perspectives on the Caregiver Role for Persons With Alzheimer's or Dementia
- Novel Definitions of Wellness and Distress among Family Caregivers of Patients with Acute Cardiorespiratory Failure: A Qualitative Study
- Social Connectedness Between Family Caregivers and Older Adults Living in Long-Term Care Homes in the Context of COVID-19
- Describing providers' perspectives on the needs and challenges of family caregivers of African American people living with dementia
- A window into the reality of families living long term with challenging behaviours after a TBI
- A window into the reality of families living long term with challenging behaviours after a TBI
- Functional Decline Over Time and Change in Family and Other Unpaid Care Provided to Community-Dwelling Older Adults Living With and Without Dementia
- COVID-19 experience of people with severe mental health conditions and families in South Africa
- Effectiveness of a health education program for people with dementia and their family caregivers: An intervention by nurse practitioners
- Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention
- Characteristics and Correlates of Perceived Physical and Psychological Health Among Family Caregivers Living With Persons With Advanced Dementia
- Family Caregivers' Trajectories of Distress While Caring for a Person With Serious Mental Illness
- Perspectives on dementia care self-learning platform: A focus group study of family and professional caregivers
- Exploring the perceptions and experiences of community rehabilitation for Long COVID from the perspectives of Scottish general practitioners' and people living with Long COVID: a qualitative study
- The role of the social environment on dementia caregivers' pre-death grief: A mixed- methods systematic review
- A narrative inquiry into caregivers' experiences and management after a relative's suicide attempt in a rural community in Northeast Thailand
- What are best practices for involving family caregivers in interventions aimed at responsive behaviour stemming from unmet needs of people with dementia in nursing homes: a scoping review
- A model of acceptance for family caregivers in the management of severe mental disorders
- "I Have Accepted My Father's Death; I was not Sad but Relieved." Adaptive Grief Responses for Bereaved Dementia Family Caregivers: A Scoping Review
- 'It feels meaningful': How informal mental health caregivers in an LGBTQ community interpret their work and their role
- Giving voice to the voiceless: Understanding the perceived needs of dementia family carers in Soweto, a South African township
- Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State
- Double-duty caregivers enduring COVID-19 pandemic to endemic: "It's just wearing me down"
- Recovery journey of people with a lived experience of schizophrenia: a qualitative study of experiences
- Social Isolation of Older Adults, Family, and Formal Caregivers During the COVID-19 Pandemic: Stories and Solutions Through Participatory Action Research
- Access to primary care for children and young people (CYP) in the UK: a scoping review of CYP's, caregivers' and healthcare professionals' views and experiences of facilitators and barriers
- Profiles of psychological flexibility and caregiving experience in dementia family caregivers: A latent profile analysis
- Burden of care and coping strategies among informal caregivers of people with behavioral and psychological symptoms of dementia in rural south-western Uganda
- Psychosocial factors associated with coping of inpatient stroke survivors and family caregivers: A dyadic analysis
- Evaluation of a depression care model for the hill tribes: a family and community-based participatory research
- Social Identity and Online Support Groups: A Qualitative Study with Family Caregivers
- The Effect of a Mindful Self-Compassion Intervention on Burden, Express Emotion and Mental Well-Being in Family Caregivers of Patients with Schizophrenia: A Randomized Controlled Trial
- Family conflict over illness beliefs and care strategies: implications for burden in family caregivers
- A Community-Based Study of Cognitive Impairment Caregiving Outcomes Pre- and During the COVID-19 Pandemic
- "You Just Want to Be Able to Communicate With Your Child": Parents' Perspectives on Communication and AAC Use for Beginning Communicators on the Autism Spectrum
- Moving forward with dementia: an explorative cross-country qualitative study into post-diagnostic experiences
- The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis
- "Your son needs help … and we're gonna help him": A qualitative study of the experiences of gun-owning caregivers of adolescents receiving lethal means counseling in the emergency department
- A qualitative assessment of provider-perceived barriers to implementing family-based treatment for anorexia nervosa in low-income community settings
- Exploring the associations between competence in dementia care and work attitudes among formal caregivers in nursing homes
- Impact of Child and Family Factors on Caregivers' Mental Health and Psychological Distress during the COVID-19 Pandemic in Greece
- Predictors of psychological distress among rural family/friend caregivers of people living with dementia in the United States: Consequences of the COVID-19 pandemic
- Adapting a Dutch Web-Based Intervention to Support Family Caregivers of People With Dementia in the UK Context: Accelerated Experience-Based Co-Design
- Ambulance use and emergency department visits among people with dementia: A cross-sectional survey
- Shanghai Community-Based Schizophrenia Cohort (SCS): a protocol for establishing a longitudinal cohort and research database of patients with schizophrenia receiving community-based mental health treatment
- Experiences of caregivers of people with dementia in Indonesia: A focus group study
- Cognitive assessment after stroke: A qualitative study of patients' experiences
- Gender differences in caregiver attitudes and unmet needs for activities of daily living (ADL) assistance among older adults with disabilities