Evidence
BMJ Open. 2024 Apr 8;14(4):e081364. doi: 10.1136/bmjopen-2023-081364.
ABSTRACT
OBJECTIVES: This study aims to understand the caregiving experiences of family caregivers of people with schizophrenia in a community.
DESIGN: A qualitative study based on phenomenological analysis was conducted through in-depth interviews.
SETTING: This study was carried out from May to June 2023 in two community health service centres in urban Beijing, China.
PARTICIPANTS: We selected 16 family caregivers for interviews using purposive sampling method.
RESULTS: Four themes and 10 subthemes were identified: (1) psychosocial distress of family caregivers (feeling unprepared and helpless at the beginning, confronting negative emotions in long-term care and straying away from social life); (2) adverse impacts on the whole family (poor cooperation within the family, insufficient family involvement in professional care); (3) coping with family caregiving (accepting the reality of the patients’ illness, struggling with family life balance and having realistic expectations); (4) concerns about future care (daily living support, physical health management).
CONCLUSION: Family caregivers experienced psychosocial distress and family stress in the process of caregiving. They had to cope with caregiving stress and were concerned about the long-term care of people with schizophrenia. These findings provide implications for intervention programmes to strengthen social support, family involvement, and active coping for caregivers and develop long-term care mechanisms for people with schizophrenia.
PMID:38589261 | DOI:10.1136/bmjopen-2023-081364
Estimated reading time: 4 minute(s)
Latest: Psychiatryai.com #RAISR4D Evidence
Cool Evidence: Engaging Young People and Students in Real-World Evidence
Real-Time Evidence Search [Psychiatry]
AI Research
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
🌐 90 Days
AI Virtual Reality Related Evidence Matrix
- Experiences of African American caregivers providing care for family living with Alzheimer's disease: A descriptive phenomenological study
- What Self-Management Skills Do Turkish Caregivers Have in Caring for People with Dementia? Results of a Qualitative Survey
- Experiences of the family caregivers of persons with schizophrenia in north Indian region: A qualitative inquiry
- Exploration of family caregivers' experiences on coping in dementia care in Ghana: a phenomenological study
- Caregiving information needs of family caregivers of adolescent patients with suicide attempts: a qualitative study in China
- Wolf in Sheep's Clothing? Violent, Abusive, and Harmful Behavior by the Older Person Toward Their Family Caregivers: A Qualitative Study
- Wolf in Sheep's Clothing? Violent, Abusive, and Harmful Behavior by the Older Person Toward Their Family Caregivers: A Qualitative Study
- Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia
- "Sustaining the burden". A qualitative study on the emotional impact and social functioning of family caregivers of patients with psychosis
- Experiences of family caregivers taking care getting lost of persons with dementia: a qualitative study
- Needs of family caregivers of hospitalised adults with dementia during care transitions: a qualitative study in a US Department of Veterans Affairs Hospital
- Family resilience experiences of individuals with schizophrenia-family caregivers dyads: Qualitative study
- Barriers to maintaining dignity for patients with schizophrenia: A qualitative study
- Intersectionality and Caregiving: The Exclusion Experience and Coping Resources of Immigrant Women Caring for a Family Member With Severe Mental Illness
- Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study
- Operational Mechanisms of Peer Support Groups and Support for Caregivers of People Living with Serious Mental Illness
- Care burden and associated factors among caregivers of patients with bipolar type I disorder
- Telephone-based mindfulness intervention positively impacts family communication and stress within rural, African American dementia caregiving teams
- Accepting and committing to caregiving for schizophrenia-a mixed method pilot study
- Coping With COVID-19: Perspectives of Caregivers of Children and Young People With Chronic Kidney Disease
- Providing and receiving support through a tailor-made mobile app: a qualitative study on experience of professionals and family caregivers to persons with dementia
- Quality of Life and Relationships in Caregivers of People With Dementia. A Gender Perspective
- Factors affecting support: experiences of Iranian older spousal caregivers of people with Alzheimer's disease and their support resources
- Burden in caregivers of patients with schizophrenia, depression, dementia, and stroke in Japan: comparative analysis of quality of life, work productivity, and qualitative caregiving burden
- Adjustment and coping in spousal caregivers of cervical cancer patients in Ghana: A qualitative phenomenological study
- DigiTRAC: Qualitative insights from knowledge users to inform the development of a Digital Toolkit for enhancing resilience among multiple sclerosis caregivers
- The Mediating Effect of Social Participation Restriction on the Association Between Role Overload and Mental Health Among Caregivers of Older Adults with Dementia
- The lucidity in dementia experience: perspectives from family and professional caregivers
- Development of an Emergency Department Family Navigator and Text Message Intervention for Caregivers to Reduce Youth Risk of Suicide and Self-injurious Behavior
- Everyday Uses of Music Listening and Music Technologies by Caregivers and People With Dementia: Survey and Focus Group Study
- Social support and managing schizophrenia in Tanzania: Perspectives from treatment-engaged individuals and relative caregivers
- Feasibility of training family caregivers of people living with dementia online to deliver life review depression intervention at home
- "He is changing, but I'm changing too": An interpretative phenomenological analysis of spouse caregivers' identity in the context of dementia
- Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals
- Understanding the home hospice experience of Puerto Rican caregivers
- Qualitative study to explore the perspectives and mental health experiences of first episode psychosis patients and their caregivers in North India
- Development and Validation of the Dementia Caregiver Burden Scale: A Tool for Community-Dwelling Dementia Caregiver
- Patterns of Family Conflict and Accusations of Abuse in Dementia Family Caregivers: A Latent Class Analysis
- Feelings of Empowerment Scale for Family Caregivers: Development, Exploratory, and Confirmative Analysis
- Risk factors and strategies for relapse prevention among individuals living with serious mental illness in South Africa: Qualitative inquiry from patients' and caregivers' perspectives
- Gender Inequalities of Health and Quality of Life in Informal Caregivers in Spain: Protocol for the Longitudinal and Multicenter CUIDAR-SE Study
- Gender Inequalities of Health and Quality of Life in Informal Caregivers in Spain: Protocol for the Longitudinal and Multicenter CUIDAR-SE Study
- Challenges and coping mechanisms of parents of children with attention deficit hyperactivity disorder in Addis Ababa, Ethiopia: a qualitative study
- Experiences managing behavioral symptoms among Latino caregivers of Latino older adults with dementia and memory problems: a qualitative study
- "Glimmers of hope and good things": Positive aspects of caregiving to autistic adolescents and young adults
- Navigating Both Roles: A Photovoice Exploration of the Young Adult Balancing Daughterhood and Caregiving for a Mother With Young-Onset Dementia
- Navigating Both Roles: A Photovoice Exploration of the Young Adult Balancing Daughterhood and Caregiving for a Mother With Young-Onset Dementia
- Stubborn Families: Logics of Care of a Family Member with Borderline Personality Disorder
- Exploring Healthcare Providers' Difficulties and Strategies when Caring for Community-Dwelling People With Dementia Who are at Risk of Getting Lost
- Purpose in life among haemodialysis caregivers: Links with adaptive coping, caregiver burden, and psychological distress
- From Survival to Growth - The Coping Experience of Mothers of Children with Disabilities During a Global Crisis: The Case of COVID-19
- Neglect of older adults living with dementia in family caregiving: A dimensional concept analysis
- Ethical Dilemmas and Coping Experiences of Nurses Caring for Patients With Hematologic Cancer: A Phenomenological Study
- Integrating programme theory into the development of a core outcome set for technology-assisted counselling interventions in dementia: study protocol of the ProCOS study
- Outcomes Among Mexican American and Non-Hispanic White Informal Stroke Caregivers
- "I don't really know how to help her." Family caregivers' capabilities, opportunities and motivations to provide hearing support to long-term care home residents with dementia
- Characteristics of Informal Caregivers and Social Participation of People with Dementia
- Palliative care for patients with heart failure and family caregivers in rural Appalachia: a randomized controlled trial
- Mental Health Service Users and Their Caregivers Perspectives on Personal Recovery from Severe Mental Health Conditions in Cape Town, South Africa: A Qualitative Study
- Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis
- Relationships among self-disclosure, social support and psychological distress in caregivers of patients with advanced lung cancer: A mediating model
- Relationships among self-disclosure, social support and psychological distress in caregivers of patients with advanced lung cancer: A mediating model
- Hidden care: a qualitative exploration of the roles and responsibilities of language brokers
- Hidden care: a qualitative exploration of the roles and responsibilities of language brokers
Evidence Blueprint
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
Caregiving experiences of family caregivers of patients with schizophrenia in a community: a qualitative study in Beijing
🌐 365 Days
AI Virtual Reality Related Evidence Matrix
- Experiences of African American caregivers providing care for family living with Alzheimer's disease: A descriptive phenomenological study
- What Self-Management Skills Do Turkish Caregivers Have in Caring for People with Dementia? Results of a Qualitative Survey
- Experiences of the family caregivers of persons with schizophrenia in north Indian region: A qualitative inquiry
- Exploration of family caregivers' experiences on coping in dementia care in Ghana: a phenomenological study
- Caregiving information needs of family caregivers of adolescent patients with suicide attempts: a qualitative study in China
- Wolf in Sheep's Clothing? Violent, Abusive, and Harmful Behavior by the Older Person Toward Their Family Caregivers: A Qualitative Study
- Wolf in Sheep's Clothing? Violent, Abusive, and Harmful Behavior by the Older Person Toward Their Family Caregivers: A Qualitative Study
- Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia
- Development of family resource indicators for people with schizophrenic disorder in community by modified Delphi method in Beijing, China
- Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives
- "A little bit different now": Impacts of caregiving for parent with cancer on psychosocial development in emerging and young adulthood
- "Sustaining the burden". A qualitative study on the emotional impact and social functioning of family caregivers of patients with psychosis
- Experiences of family caregivers taking care getting lost of persons with dementia: a qualitative study
- Predictors of rewarded caregiving for family caregivers of person with dementia: A longitudinal study
- Tilting at Windmills - A Qualitative Study about Family Caregiver Interactions and Perceptions in Forensic Mental Health Care
- Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study
- "It shouldn't be like this": Family caregivers navigating insurance for family members with dementia
- Needs of family caregivers of hospitalised adults with dementia during care transitions: a qualitative study in a US Department of Veterans Affairs Hospital
- Family resilience experiences of individuals with schizophrenia-family caregivers dyads: Qualitative study
- Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review
- Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic
- Barriers to maintaining dignity for patients with schizophrenia: A qualitative study
- Care for the cerebrovascular accident survivors: experiences of family caregivers
- Intersectionality and Caregiving: The Exclusion Experience and Coping Resources of Immigrant Women Caring for a Family Member With Severe Mental Illness
- Experiences of the older spousal caregivers of patients with cancer during palliative chemotherapy: a qualitative descriptive study
- The caring experiences of family caregivers for patients with advanced cancer in Uganda: A qualitative study
- Impact of the COVID-19 Pandemic on Latino Families With Alzheimer Disease and Related Dementias: Qualitative Interviews With Family Caregivers and Primary Care Providers
- Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study
- A Duty to Care: Male Perspectives on the Caregiver Role for Persons With Alzheimer's or Dementia
- Novel Definitions of Wellness and Distress among Family Caregivers of Patients with Acute Cardiorespiratory Failure: A Qualitative Study
- Operational Mechanisms of Peer Support Groups and Support for Caregivers of People Living with Serious Mental Illness
- Care burden and associated factors among caregivers of patients with bipolar type I disorder
- Telephone-based mindfulness intervention positively impacts family communication and stress within rural, African American dementia caregiving teams
- Accepting and committing to caregiving for schizophrenia-a mixed method pilot study
- Coping With COVID-19: Perspectives of Caregivers of Children and Young People With Chronic Kidney Disease
- Describing providers' perspectives on the needs and challenges of family caregivers of African American people living with dementia
- COVID-19 experience of people with severe mental health conditions and families in South Africa
- Providing and receiving support through a tailor-made mobile app: a qualitative study on experience of professionals and family caregivers to persons with dementia
- Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention
- Effectiveness of a health education program for people with dementia and their family caregivers: An intervention by nurse practitioners
- Characteristics and Correlates of Perceived Physical and Psychological Health Among Family Caregivers Living With Persons With Advanced Dementia
- Quality of Life and Relationships in Caregivers of People With Dementia. A Gender Perspective
- Factors affecting support: experiences of Iranian older spousal caregivers of people with Alzheimer's disease and their support resources
- Perspectives on dementia care self-learning platform: A focus group study of family and professional caregivers
- The role of the social environment on dementia caregivers' pre-death grief: A mixed- methods systematic review
- "I Have Accepted My Father's Death; I was not Sad but Relieved." Adaptive Grief Responses for Bereaved Dementia Family Caregivers: A Scoping Review
- A model of acceptance for family caregivers in the management of severe mental disorders
- Burden in caregivers of patients with schizophrenia, depression, dementia, and stroke in Japan: comparative analysis of quality of life, work productivity, and qualitative caregiving burden
- Giving voice to the voiceless: Understanding the perceived needs of dementia family carers in Soweto, a South African township
- Adjustment and coping in spousal caregivers of cervical cancer patients in Ghana: A qualitative phenomenological study
- DigiTRAC: Qualitative insights from knowledge users to inform the development of a Digital Toolkit for enhancing resilience among multiple sclerosis caregivers
- Double-duty caregivers enduring COVID-19 pandemic to endemic: "It's just wearing me down"
- Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State
- Social Isolation of Older Adults, Family, and Formal Caregivers During the COVID-19 Pandemic: Stories and Solutions Through Participatory Action Research
- Profiles of psychological flexibility and caregiving experience in dementia family caregivers: A latent profile analysis
- Family Caregivers' Trajectories of Distress While Caring for a Person With Serious Mental Illness
- The Mediating Effect of Social Participation Restriction on the Association Between Role Overload and Mental Health Among Caregivers of Older Adults with Dementia
- The lucidity in dementia experience: perspectives from family and professional caregivers
- Development of an Emergency Department Family Navigator and Text Message Intervention for Caregivers to Reduce Youth Risk of Suicide and Self-injurious Behavior
- Everyday Uses of Music Listening and Music Technologies by Caregivers and People With Dementia: Survey and Focus Group Study
- The Effect of a Mindful Self-Compassion Intervention on Burden, Express Emotion and Mental Well-Being in Family Caregivers of Patients with Schizophrenia: A Randomized Controlled Trial
- Social support and managing schizophrenia in Tanzania: Perspectives from treatment-engaged individuals and relative caregivers
- A window into the reality of families living long term with challenging behaviours after a TBI
- A window into the reality of families living long term with challenging behaviours after a TBI