Evidence
Autism. 2023 Aug 22:13623613231192133. doi: 10.1177/13623613231192133. Online ahead of print.
ABSTRACT
Autism disclosure – that is sharing their autism diagnosis or identity with a person or people – is a difficult decision for many autistic people. While telling people they are autistic can be positive and helpful, it can also create a lot of problems. What we have learnt is that disclosure is really complicated. Rather than asking research participants questions about what might happen, we looked at what people were saying on public social media posts (Reddit and Twitter) about what did happen. We used three years of posts that were related to autism disclosure from a wide range of adults (autistic and non-autistic). Four main ideas were created from our data, with the key finding being that society does not understand autism. This lack of understanding creates problems for autistic people in work, dating, healthcare and mental health. The remaining ideas were that autistic people should have privacy and be treated with respect, that autistic representation can help society and that non-autistic people need to do more to help autistic people. Our findings support that society needs to do more through autism advocacy, better media representation and more public role models. Increasing the accuracy of understanding of autism across society will mean that autistic people can feel safer to disclose if they want to.
PMID:37606257 | DOI:10.1177/13623613231192133
Estimated reading time: 4 minute(s)
Latest: Psychiatryai.com #RAISR4D Evidence
Cool Evidence: Engaging Young People and Students in Real-World Evidence
Real-Time Evidence Search [Psychiatry]
AI Research
‘Most people have no idea what autism is’: Unpacking autism disclosure using social media analysis
🌐 90 Days
AI Virtual Reality Related Evidence Matrix
- Gender, assigned sex at birth, and gender diversity: Windows into diagnostic timing disparities in autism
- 'It's not always textbook social anxiety': A survey-based study investigating the nature of social anxiety and experiences of therapy in autistic people
- 'A certain magic' - autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis
- 'A certain magic' - autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis
- Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan
- "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life
- 'Autism is the Arena and OCD is the Lion': Autistic adults' experiences of co-occurring obsessive-compulsive disorder and repetitive restricted behaviours and interests
- 'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia
- Is she still angry? Intact learning but no updating of facial expressions priors in autism
- An ecological systems model of employee experience in industry-led autism employment programmes
- Attitudes of autistic adults toward genetic testing for autism
- Smiling synchronization predicts interaction enjoyment in peer dyads of autistic and neurotypical youth
- A Measurement Invariance Analysis of the Anxiety Scale for Autism-Adults in a Sample of Autistic and Non-Autistic Men and Women
- Detecting Substance Use Disorder Using Social Media Data and the Dark Web: Time- and Knowledge-Aware Study
- Moral foundations in autistic people and people with systemizing minds
- Associations between autistic traits, depression, social anxiety and social rejection in autistic and non-autistic adults
- Autistic Women's Experience of Motherhood: A Qualitative Analysis of Reddit
- A comparison of gender diversity in transgender young people with and without autistic traits from the Trans 20 cohort study
- A comparison of gender diversity in transgender young people with and without autistic traits from the Trans 20 cohort study
- Social Media and Nutritional Guidelines in Pregnancy
- Social Media and Nutritional Guidelines in Pregnancy
- Measuring depression and anxiety in autistic college students: A psychometric evaluation of the PHQ-9 and GAD-7
- Training Law Enforcement Officers About Autism: Evaluation of Adding Virtual Reality or Simulation to a Traditional Training Approach
- Training Law Enforcement Officers About Autism: Evaluation of Adding Virtual Reality or Simulation to a Traditional Training Approach
- Online social connections and Internet use among people with intellectual disabilities in the United Kingdom during the COVID-19 pandemic
- Physical Activity for Anxiety for Autistic People: A Systematic Review
- Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review
- "I am afraid of being treated badly if I show it": A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
- Self-compassion improves emotion regulation and mental health outcomes: A pilot study of an online self-compassion program for autistic adults
- Associations between autistic and comorbid somatic problems of gastrointestinal disorders, food allergy, pain, and fatigue in adults
- College Faculty Experiences With Student Disclosures of Victimization
- The use of social media after bereavement by suicide: results from a French online survey
- Academic learning challenges and links to vocational outcomes in young autistic adults
- On the (in)effectiveness of textual disclosures on expectancies, attitudes, and perceived appropriateness of alcohol
- Self-perceived bullying victimization in pre-adolescents on the autism spectrum: EPINED study
- Autism and sexual and gender minority identity in college students: Examination of self-reported rates, functional outcomes, and treatment engagement
- Autistic adults exhibit typical sensitivity to changes in interpersonal distance
- Mapping the differential impact of spontaneous and conversational laughter on brain and mind: an fMRI study in autism
- Mapping the differential impact of spontaneous and conversational laughter on brain and mind: an fMRI study in autism
- Making sexual and reproductive healthcare environments safe and supportive for disclosure of sexual violence: interview findings from patients and healthcare professionals using a realist approach
- The Role of Everyday Executive Function in Observed Social Symptoms of Autism Spectrum Disorder
- Prevalence of autism in first-episode psychosis in two Hong Kong teaching hospitals
- Subjective wellbeing of autistic adolescents and young adults: A cross sectional study
- Identifying X (Formerly Twitter) Posts Relevant to Dementia and COVID-19: Machine Learning Approach
- Putting the Spotlight Back Onto the Flanker Task in Autism: Autistic Adults Show Increased Interference from Foils Compared with Non-autistic Adults
- Psychological behavioral therapies to improve autistic children's behaviors during dental visits: A systematic review and meta-analysis
- "When I need help, I ask my friends": experiences of Spanish autistic women when disclosing their late diagnosis to family and friends
- Deliberate and Self-Conscious Adaptation of Eye-Contact by Autistic Adults
- Impact of a Genetic Diagnosis for a Child's Autism on Parental Perceptions
- Bilingualism Predicts Affective Theory of Mind in Autistic Adults
- Sleep problems and circadian rhythm functioning in autistic children, autism with co-occurring attention deficit hyperactivity disorder, and typically developing children: A comparative study
- Parents' disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review
- Parents' disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review
- Autistic and non-autistic transgender youth are similar in gender development and sexuality phenotypes
- The Gigii-Bapiimin Study: resilience and the impacts of COVID-19 on health and wellbeing of Indigenous people living with HIV in Manitoba and Saskatchewan
- Differently different?: A commentary on the emerging social cognitive neuroscience of female autism
- Reports on sexual violence published in an online Chinese newspaper: A new frame research
- Reports on sexual violence published in an online Chinese newspaper: A new frame research
- An ethical advantage of autistic employees in the workplace
- Autistic adults perceive and experience laughter differently to non-autistic adults
- Barriers to Providing Transitional Supports for Autistic Students: Insights of School Professionals
- Measurement properties of tools used to assess self-harm in autistic and general population adults
- Where do autistic people work? The distribution and predictors of occupational sectors of autistic and general population employees
- Natural language acquisition and gestalt language processing: A critical analysis of their application to autism and speech language therapy()
Evidence Blueprint
‘Most people have no idea what autism is’: Unpacking autism disclosure using social media analysis
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
‘Most people have no idea what autism is’: Unpacking autism disclosure using social media analysis
🌐 365 Days
AI Virtual Reality Related Evidence Matrix
- Disclosing an autism diagnosis: A social identity approach
- The effect of autism phenotype and diagnosis disclosure on students' desire for social distance from autistic peers
- What are the autism research priorities of autistic adults in Scotland?
- The adult experience of being diagnosed with autism spectrum disorder: A qualitative meta-synthesis
- Social motor synchrony in autism spectrum conditions: A systematic review
- Social self-efficacy and mental well-being in autistic adults: Exploring the role of social identity
- Gender, assigned sex at birth, and gender diversity: Windows into diagnostic timing disparities in autism
- Autistic adults show enhanced generosity to socially distant others
- Listening to autistic voices regarding competing for social status
- Diagnosis as a new beginning not an end: A participatory photovoice study on navigating an autism diagnosis in adulthood
- Disclosing an autism diagnosis improves ratings of candidate performance in employment interviews
- Career progression for autistic people: A scoping review
- Autistic young people adaptively use gaze to facilitate joint attention during multi-gestural dyadic interactions
- Non-autistic observers both detect and demonstrate the double empathy problem when evaluating interactions between autistic and non-autistic adults
- 'It's not always textbook social anxiety': A survey-based study investigating the nature of social anxiety and experiences of therapy in autistic people
- 'A certain magic' - autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis
- 'A certain magic' - autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis
- A longitudinal study of loneliness in autism and other neurodevelopmental disabilities: Coping with loneliness from childhood through adulthood
- Autistic identity: A systematic review of quantitative research
- Autistic identity: A systematic review of quantitative research
- A meta-ethnography of autistic people's experiences of social camouflaging and its relationship with mental health
- Contributing to an autism biobank: Diverse perspectives from autistic participants, family members and researchers
- "Survival classes for a neurotypical world": What French autistic adults want and need after receiving an autism diagnosis
- Autism, Discrimination and Masking: Disrupting a Recipe for Trauma
- Autistic Traits of People Who Engage in Pup Play: Occurrence, Characteristics and Social Connections
- Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan
- Time to level up: A systematic review of interventions aiming to reduce stigma toward autistic people
- Combating stigma in autism research through centering autistic voices: a co-interview guide for qualitative research
- Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity
- Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development
- "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life
- 'I'm not just being difficult . . . I'm finding it difficult': A qualitative approach to understanding experiences of autistic parents when interacting with statutory services regarding their autistic child
- 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England
- Autism and camouflage
- Social Anxiety in Autistic People: Does the Clark and Wells Model fit?
- First things first: An exploration of the effects of psychoeducation for older autistic adults
- The INSAR Community Collaborator Request: Using community-academic partnerships to enhance outcomes of participatory autism research
- The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets
- Mortality risk among Autistic children and young people: A nationwide birth cohort study
- The Foundations of Autistic Flourishing
- Public concerns and attitudes towards autism on Chinese social media based on K-means algorithm
- The emotional support plan: Feasibility trials of a brief, telehealth-based mobile intervention to support coping for autistic adults
- Literacy in nonspeaking autistic people
- 'Autism is the Arena and OCD is the Lion': Autistic adults' experiences of co-occurring obsessive-compulsive disorder and repetitive restricted behaviours and interests
- Autism-Related Language Preferences of French-Speaking Autistic Adults: An Online Survey
- 'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia
- Social Reactions to Disclosure of Sexual Violence Experienced by Sexual and Gender Minority Young Adults: Comparisons of Sexual and Gender Minority Recipients Versus Cisgender/Heterosexual Recipients
- 'It's a symbolic violence': Autistic people's experiences of discrimination at universities in Australia
- Is she still angry? Intact learning but no updating of facial expressions priors in autism
- Satisfaction with social connectedness is associated with depression and anxiety symptoms in neurodiverse first-semester college students
- Factors mediating pre-existing autism diagnosis and later suicidal thoughts and behaviors: A follow-up cohort study
- Self-disclosure by adolescents in therapy for eating difficulties: A Q-Methodology study
- Is camouflaging unique for autism? A comparison of camouflaging between adults with autism and ADHD
- Evaluating a new supported employment internship programme for autistic young adults without intellectual disability
- The Impact of an Autistic Character Media Portrayal on Autistic Stereotypes : MEDIA PORTRAYAL
- Scene construction ability in neurotypical and autistic adults
- A qualitative exploration of an autism-specific self-compassion program: The ASPAA
- A framework for neurodiversity-affirming interventions for autistic individuals
- An ecological systems model of employee experience in industry-led autism employment programmes
- The Intersection of Autism and Transgender and Nonbinary Identities: Community and Academic Dialogue on Research and Advocacy
- Psychometric exploration of the RAADS-R with autistic adults: Implications for research and clinical practice
- Qualitative Ascriptions of Autistic Behavior by Non-Autistic College Students
- A commentary on children's books about autism: What messages do they send about neurodiversity?
- Exploring the association between social camouflaging and self- versus caregiver-report discrepancies in anxiety and depressive symptoms in autistic and non-autistic socially anxious adolescents