Evidence
![](https://psychiatryai.com/wp-content/uploads/2023/04/psychiatryai_com.webp)
J Nurs Meas. 2024 Mar 22:JNM-2023-0018.R1. doi: 10.1891/JNM-2023-0018. Online ahead of print.
ABSTRACT
Background and Purpose: Quality of life (QOL) assessment invites the perspectives of people living with dementia to be shared with family caregivers and healthcare providers. A review of reviews was conducted to describe synthesized evidence (i.e., from other reviews) regarding self- and proxy-reports of QOL for this population. Methods: Searches were conducted in four databases. The 25 included articles addressed self- or proxy-rated patient-reported outcome measures, focused on any type of dementia, and were a review or synthesis published in English. Results: Individuals with dementia are largely able to self-report QOL. Proxy-reports are incongruent with self-reports due to various factors, including the proxy-patient relationship and perspective of measurement. Conclusion: When assessing QOL for people with dementia, self-reports are preferred to proxy-reports; however, a combination is recommended.
PMID:38519071 | DOI:10.1891/JNM-2023-0018
![Google](https://www.google.com/images/branding/googlelogo/2x/googlelogo_light_color_92x30dp.png)
![Google Keep](https://www.gstatic.com/images/branding/product/1x/keep_48dp.png)
![Share on Linkedin](https://psychiatryai.com/wp-content/uploads/2023/10/linkedin-logo-png-2048-1.png)
Estimated reading time: 3 minute(s)
Latest: Psychiatryai.com #RAISR4D Evidence
![](/wp-content/uploads/2024/04/bd462cc11bcf0bd0d0d6f1d0f8b7cd04-modified-1.png)
Cool Evidence: Engaging Young People and Students in Real-World Evidence
![](/wp-content/uploads/2024/04/bd462cc11bcf0bd0d0d6f1d0f8b7cd04-modified-1.png)
Real-Time Evidence Search [Psychiatry]
![](/wp-content/uploads/2024/04/pubmed.png)
AI Research
![](/wp-content/uploads/2024/05/Il5nR_nf_400x400-modified-1.png)
Self- and Proxy-Completion of Quality of Life Assessment in Dementia Care: A Review of Reviews
![](https://psychiatryai.com/wp-content/uploads/2023/04/psychiatryai_com.webp)
🌐 90 Days
AI Virtual Reality Related Evidence Matrix
Is there evidence for using ketamine among individuals with dementia? Exploring the influence of weather variability and climate change on health outcomes in people living with dementia: A scoping review protocol Quality indicators to monitor the quality and safety of care for older people: a scoping review protocol Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review Barriers and facilitators to diagnosing dementia in migrant populations: A systematic review of European health professionals' perspectives Usability of web-based tools designed for communication and decision-making in dementia: Systematic review and design brief A Meta-Synthesis on Sexuality in Persons with Dementia Mapped Using the Model of Human Occupation Impact of care-recipient relationship type on quality of life in caregivers of older adults with dementia over time AI Quality Standards in Health Care: Rapid Umbrella Review Personalized interactive multimedia systems to support meaningful activities in dementia care: A systematic review To be published in: Archives of Gerontology and Geriatrics Elder Abuse in Older Adults With Dementia: Protective Factors and Adverse Effects Mentalising imagery therapy for family dementia caregivers: protocol for a scoping review Patient-reported experience measures for people living with dementia: A scoping review Effectiveness of a health education program for people with dementia and their family caregivers: An intervention by nurse practitioners The current status of apathy in patients with dementia and its factors: A systematic review Examining the Relationships Between Indoor Environmental Quality Parameters Pertaining to Light, Noise, Temperature, and Humidity and the Behavioral and Psychological Symptoms of People Living With Dementia: Scoping Review Technology Usability for People Living With Dementia: Concept Analysis Out-of-hospital paramedic interactions with people living with dementia: a scoping review Young onset dementia and driving cessation: a scoping review of lived experiences End of life care for people with dementia and comorbid cancer: recent studies and research gaps Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme Meaning-making of dementia caregiving: A systematic review of qualitative studies Characteristics of quality improvement interventions to improve physical healthcare in mental health settings: a scoping review protocol Learning from people with dementia what works well for well-being: interviews and focus groups Psychometric of the Persian version of Quality of Life in Late-Stage Dementia (QUALID) in the elderly with Alzheimer's disease Prevalence of involuntary treatment among community-living older persons with dementia: A systematic review Dementia-literate informal caregivers: An evolutionary concept analysis Dementia-literate informal caregivers: An evolutionary concept analysis What Self-Management Skills Do Turkish Caregivers Have in Caring for People with Dementia? Results of a Qualitative Survey Trajectory and Determinants of Quality of Life Among Postpartum Women Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives Core Set of Patient-Reported Outcome Measures for Measuring Quality of Life in Clinical Obesity Care Exploration of family caregivers' experiences on coping in dementia care in Ghana: a phenomenological study Efficacy of COMPAs, an App Designed to Support Communication Between Persons Living With Dementia in Long-Term Care Settings and Their Caregivers: Mixed Methods Implementation Study Patient-centered outcomes and quality of life in elderly people with epilepsy: A focused review Perspectives on dementia care self-learning platform: A focus group study of family and professional caregivers Interprofessional collaboration in palliative dementia care Quality of patient-oriented online information on treatment of dementia: A comparative assessment of web pages in English and Hindi language What is in a Day? Investigating the Relationship Between Sleep Quality and Quality of Life Among Caregivers of Children With Autism Exploring Healthcare Providers' Difficulties and Strategies when Caring for Community-Dwelling People With Dementia Who are at Risk of Getting Lost Changes in prevalence and incidence of dementia and risk factors for dementia: an analysis from cohort studies Factors related to cognitive performance among black caregivers of persons living with a chronic illness: An exploratory study Impact of COVID-19 restrictive measures during lockdown period on eating disorders: An umbrella review Population attributable fractions of modifiable risk factors for dementia: a systematic review and meta-analysis Population attributable fractions of modifiable risk factors for dementia: a systematic review and meta-analysis Quality of life in a high-risk group of elderly primary care patients: characteristics and potential for improvement A systematic review of digital access to post-diagnostic health and social care services for dementia Need-based intervention delivery for family caregivers of older adults with dementia Characteristics of Informal Caregivers and Social Participation of People with Dementia A Multidimensional, Person-Centered Framework for Functional Assessment in Dementia: Insights from the 'What', 'How', 'To Whom', and 'How Much' Questions A Multidimensional, Person-Centered Framework for Functional Assessment in Dementia: Insights from the 'What', 'How', 'To Whom', and 'How Much' Questions Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study Association between chronic pain and dementia: a systematic review and meta-analysis Barriers to Healthcare for Transgender Individuals Person-centredness in dementia care: an integrative review of theoretical approaches Person-centredness in dementia care: an integrative review of theoretical approaches Interventions that address interpersonal violence experienced by adolescents globally: a systematic review of reviews Non-pharmacological interventions in the management of dementia-related psychosis Examining cognitive behavioral therapy interventions for unaccompanied minors: a systematic review and qualitative research synthesis Operationalising the Recovery College model with people living with dementia: a realist review Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta-analysis Non-Pharmacological Interventions in the Management of Dementia-Related Psychosis: A Systematic Review and Meta-Analysis Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end-of-life Understanding Dementia Carer Experiences Before Admission to a Residential Aged Care Facility: Implications for Integrated Care
Evidence Blueprint
Self- and Proxy-Completion of Quality of Life Assessment in Dementia Care: A Review of Reviews
![](https://psychiatryai.com/wp-content/uploads/2023/04/psychiatryai_com.webp)
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
![](https://psychiatryai.com/wp-content/uploads/2023/04/psychiatryai_com.webp)
Self- and Proxy-Completion of Quality of Life Assessment in Dementia Care: A Review of Reviews
🌐 365 Days
AI Virtual Reality Related Evidence Matrix
Understanding the influence of different proxy perspectives in explaining the difference between self-rated and proxy-rated quality of life in people living with dementia: a systematic literature review and meta-analysis Quality of life of family carers of people living with dementia: review of systematic reviews of observational and intervention studies Caring burden and quality of life among the caregivers of people living with dementia - a cross-sectional study in Udupi district of Karnataka Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review Are Population-Level Approaches to Dementia Risk Reduction Under-Researched? A Rapid Review of the Dementia Prevention Literature Barriers and facilitators to dementia care in long-term care facilities: protocol for a qualitative systematic review and meta-synthesis Barriers to Advance Care Planning in Older Adults With Dementia, Their Families and Healthcare Professionals: An Umbrella Review of Qualitative Evidence Equine-assisted services for people living with dementia: a systematic review Socially Assistive Robots for patients with Alzheimer's Disease: A scoping review Experiences and perspectives on the optimal timing for initiating advance care planning in patients with mild to moderate dementia: A meta-synthesis Is there evidence for using ketamine among individuals with dementia? Exploring the influence of weather variability and climate change on health outcomes in people living with dementia: A scoping review protocol Quality indicators to monitor the quality and safety of care for older people: a scoping review protocol Quality of life in young people with limb loss: a systematic review The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review Factors Affecting Physical Activity in People with Dementia: A Systematic Review and Narrative Synthesis Patient- and proxy-reported quality of life in advanced dementia with Lewy bodies Dignity-preserving care of people with dementia in different nursing environments: a qualitative systematic review Ambulance use and emergency department visits among people with dementia: A cross-sectional survey Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review The role of the social environment on dementia caregivers' pre-death grief: A mixed- methods systematic review Adherence to Online Interventions for Family Caregivers of People With Dementia: A Meta-Analysis and Systematic Review Sleep and Caregiver Burden Among Caregivers of Persons Living With Dementia: A Scoping Review Responses of Persons Living With Dementia to Caregiver Validating Communication: A Secondary Analysis Palliative care interventions for patients with head and neck cancer: protocol for a scoping review Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers Mapping racial and ethnic healthcare disparities for persons living with dementia: A scoping review Describing providers' perspectives on the needs and challenges of family caregivers of African American people living with dementia Do physical fitness and cognitive function mediate the relationship between basic activities of daily living and quality of life in older adults with dementia? Life story templates in dementia care: Ambiguous direction and purpose Use of headphones for the delivery of music programs for people with dementia in long-term care homes: a scoping review protocol Barriers and facilitators to diagnosing dementia in migrant populations: A systematic review of European health professionals' perspectives Uncertainty in surrogate decision-making about end-of-life care for people with dementia: An integrative review Psychological and social impacts of frontotemporal dementia on caregivers and family members - A systematic review Lived experience and family engagement in psychiatry research: A scoping review of reviews Virtual reality-based dementia educational programmes for formal and informal caregivers of people with dementia: A scoping review Palliative Care Costs in Different Ambulatory-Based Settings: A Systematic Review Usability of web-based tools designed for communication and decision-making in dementia: Systematic review and design brief Diagnosis of Alzheimer's dementia and vehicle driving restriction: a scoping review A Meta-Synthesis on Sexuality in Persons with Dementia Mapped Using the Model of Human Occupation Impact of care-recipient relationship type on quality of life in caregivers of older adults with dementia over time Current trends in psychotherapies and psychosocial interventions for people with dementia: a scoping review of randomized controlled trials Current trends in psychotherapies and psychosocial interventions for people with dementia: a scoping review of randomized controlled trials AI Quality Standards in Health Care: Rapid Umbrella Review Benefits of Music Therapy in the Cognitive Impairments of Alzheimer's-Type Dementia: A Systematic Review Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention Systematic Review and Meta-Analysis of Effects of Nurse-Led Intervention for People With Dementia Similarities and differences in the prevalence and risk factors of suicidal behavior between caregivers and people with dementia: a systematic review Personalized interactive multimedia systems to support meaningful activities in dementia care: A systematic review To be published in: Archives of Gerontology and Geriatrics Occupational Therapy Interventions to Improve the Quality of Life of Older Adults with Dementia Living in Nursing Homes: A Systematic Review An umbrella review of effectiveness and efficacy trials for app-based health interventions Caring for people with dementia from culturally and linguistically diverse backgrounds in nursing homes: A scoping review "I Have Accepted My Father's Death; I was not Sad but Relieved." Adaptive Grief Responses for Bereaved Dementia Family Caregivers: A Scoping Review Elder Abuse in Older Adults With Dementia: Protective Factors and Adverse Effects Effect of digital technology interventions for cognitive function improvement in mild cognitive impairment and dementia: A systematic review and meta-analysis Mentalising imagery therapy for family dementia caregivers: protocol for a scoping review The effects of psychosocial interventions using generic photos on social interaction, mood and quality of life of persons with dementia: a systematic review Quality of Life and Health-related Quality of Life in Patients with End-stage Kidney Disease Undergoing Hemodialysis: A Literature Review Patient-reported experience measures for people living with dementia: A scoping review A scoping review on the psychosocial interventions used in day care service for people living with dementia Eating experiences in people living with dementia: A concept analysis using Rodgers's methodology Exploring self-experience practices in dementia care: A scoping review Effectiveness of a health education program for people with dementia and their family caregivers: An intervention by nurse practitioners What are best practices for involving family caregivers in interventions aimed at responsive behaviour stemming from unmet needs of people with dementia in nursing homes: a scoping review