Evidence
Health Qual Life Outcomes. 2024 Apr 29;22(1):37. doi: 10.1186/s12955-024-02254-x.
ABSTRACT
BACKGROUND: Approximately 1.5 million adults in the UK have a learning disability. The difference between age at death for this group and the general population is 26 years for females and 22 years for males. The NHS Long Term Plan (January 2019) recognises learning disabilities as a clinical priority area. People with a learning disability are often excluded from research by design or lack of reasonable adjustments, and self-reported health status/health-related quality of life questionnaires such as the EQ-5D are often not appropriate for this population. Here, we systematically examine the EQ-5D-3L (its wording, content, and format) using qualitative methods to inform the adaption of the measure for use with adults with mild to moderate learning disabilities.
METHODS: Think-aloud interviews with carers/advocates of learning-disabled adults were undertaken to explore the difficulties with completing the EQ-5D-3L. Alternative wording, language, structure, and images were developed using focus groups, stakeholder reference groups, and an expert panel. Data analysis followed a framework method.
RESULTS: The dimensions and levels within the EQ-5D-3L were deemed appropriate for adults with mild to moderate learning disabilities. Consensus on wording, structure, and images was reached through an iterative process, and an adapted version of the EQ-5D-3L was finalised.
CONCLUSION: The EQ-5D-3L adapted for adults with mild to moderate intellectual/learning disabilities can facilitate measurement of self-reported health status. Research is underway to assess the potential use of the adaptation for economic evaluation.
PMID:38685039 | DOI:10.1186/s12955-024-02254-x
Add to Google Keep
Estimated reading time: 5 minute(s)
Latest: Psychiatryai.com #RAISR4D
Cool Evidence: Engaging Young People and Students in Real-World Evidence ☀️
Real-Time Evidence Search [Psychiatry]
AI Research [Andisearch.com]
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities
🌐 90 Days
VR Related Evidence Matrix
- The oral health of adults with learning disabilities: A secondary analysis of the Adult Dental Health Survey 2009
- Diverse learners: learning disabilities and quality of life following mind-body and health education interventions for adults with neurofibromatosis
- Health inequalities for people with learning disabilities: why it matters and what emergency physicians need to know
- Disability-related inequalities in the prevalence of loneliness across the lifespan: trends from Australia, 2003 to 2020
- "He Stole My Meds to Get High:" The Mental Health and Well-Being of Women Abused by Intimate Partners and Their Disability Status
- Indonesian nurses' awareness and application of reasonable adjustments when caring for people with intellectual disability and/or autism
- Virtual reality experiential learning improved undergraduate students' knowledge and evaluation skills relating to assistive technology for older adults and individuals with disabilities
- Immigrant Origin and Disability Increase Risk for Anxiety Among Youth During COVID-19: The Role of Unmet Needs for Support in Distance Learning and Family Conflicts
- Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
- Examining the prevalence of nicotine vaping and association of major depressive episodes among adolescents and young adults by disability type in 2021
- Implementing and evaluating resources to support good maternity care for parents with learning disabilities: A qualitative feasibility study in England
- Disability status and robbery victimization in Peruvian villagers
- A predictive model for depression in Chinese middle-aged and elderly people with physical disabilities
- Health and Well-Being at the Transition to Adulthood Among Individuals With Disabilities: An Analysis of the Panel Study of Income Dynamics
- High-intensity acute exercise impacts motor learning in healthy older adults
- Association of Disability Status and Type With Binge Drinking and Prescription Opioid Misuse Among Adults From a 3-State Sample
- Inequalities in Healthcare Access, Experience and Outcomes in Adults With Inflammatory Bowel Disease: A Scoping Review
- Mental health problems, sleep quality and overuse injuries in advanced Swedish rock-climbers - the CLIMB study
- Mental health problems, sleep quality and overuse injuries in advanced Swedish rock-climbers - the CLIMB study
- Strategies for addressing the needs of children with or at risk of developmental disabilities in early childhood by 2030: a systematic umbrella review
- Associations between problem technology use, life stress, and self-esteem among high school students
- Global, regional and national burdens of depression in adolescents and young adults aged 10-24 years, from 1990 to 2019: findings from the 2019 Global Burden of Disease study
- The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets
- Visual memory and alcohol use in a middle-aged birth cohort
- Academic performance in moderately and late preterm children in the United States: are they catching up?
- From classroom to life: Gender differences in the persistent effect of learning disabilities on adult depressive symptoms
- Who is at risk? Adults with intellectual disability at risk of admission to mental health inpatient care
- Protective factors against the emotional impact of the pandemic in adults with autism spectrum disorders (ASD) and intellectual disability (ID)
- 'Why are we stuck in hospital?' Barriers to people with learning disabilities/autistic people leaving 'long-stay' hospital: a mixed methods study
- The association between physical activity and quality of life among people aged 60-89 living in own homes and nursing homes
- Long-term recreational exercise patterns in adolescents and young adults: Trajectory predictors and associations with health, mental-health, and educational outcomes
- Acceptability of virtual psychiatric consultations for routine follow-ups post COVID-19 pandemic for people with intellectual disabilities: cross-sectional study
- Association between stress hyperglycemia ratio and diabetes mellitus mortality in American adults: a retrospective cohort study and predictive model establishment based on machine learning algorithms (NHANES 2009-2018)
- Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions
- DENTAL PATIENT-REPORTED OUTCOMES IN GERIATRIC DENTISTRY : A call for clinical translation
- Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research
- Challenges of competency-based curriculum in teaching learners with learning disabilities
- Patterns of psychotropic drug prescriptions and general practice consultations among community-dwelling older people with dementia during the first two years of the COVID-19 pandemic
- Burden and Epidemiology of Mental Disorders in the Middle East and North Africa from 1990 to 2019: Findings from the Global Burden of Disease Study
- Burden and Epidemiology of Mental Disorders in the Middle East and North Africa from 1990 to 2019: Findings from the Global Burden of Disease Study
- Experiences of stress and social safety among sexual and gender minority youth by disability status
- Measuring EQ-5D-5L utility values in parents who have experienced perinatal death
- Perceived discrimination in health care in Germany- results of a population survey
- Mental Health Conditions Associated With Strabismus in a Diverse Cohort of US Adults
- Adapting psychological interventions for people with severe and profound intellectual disabilities: A behavioural activation exemplar
- Daily Functional Characteristics and Health Among Older Adults During COVID-19: A Structural Equation Modeling Approach
- Developing an Inclusive Training Environment: Accommodations in Physical Medicine and Rehabilitation Residency Training for Residents with a Disability
- Psychotropic medicines' prevalence, patterns and effects on cognitive and physical function in older adults with intellectual disability in Ireland: longitudinal cohort study, 2009-2020
- Chronic disease and multimorbidity in the Chinese older adults' population and their impact on daily living ability: a cross-sectional study of the Chinese Longitudinal Healthy Longevity Survey (CLHLS)
- Predictors of health-related quality of life for children with neurodevelopmental conditions
- A cross-sectional study of online learning during the COVID-19 pandemic: Student perceptions
- Learning styles, academic performance and mental health among medical students in King Faisal University, Saudi Arabia
- Physical health, primary care utilization and long-term quality of life in borderline personality disorder: A 10-year follow-up study in a Spanish sample
- Patterns of Health-related Quality of Life in Men Who Inject Drugs: A Survey in Southeast Iran
- Patterns of Health-related Quality of Life in Men Who Inject Drugs: A Survey in Southeast Iran
- Association of depressive symptom severity and suicidal ideation with health-related quality of life among stroke survivors, NHANES 2005-2018
- Explainable artificial intelligence models for predicting risk of suicide using health administrative data in Quebec
- Impact of Long-COVID in children: a large cohort study
- Prevalence of Enuresis in Children, Adolescents, and Young Adults Diagnosed With Attention Deficit Hyperactivity Disorder
- Deaths among adults under supervision of the England and Wales' probation services: variation in individual and criminal justice-related factors by cause of death
- Predictive modeling of initiation and delayed mental health contact for depression
- Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders' Perspectives
- Impact of Optimism on Cognitive Performance of People Living in Rural Area: Findings From a 20-Year Study in US Adults
- Explainable artificial intelligence for predicting red blood cell transfusion in geriatric patients undergoing hip arthroplasty: Machine learning analysis using national health insurance data
Evidence Blueprint
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities
☊ AI-Driven Related Evidence Nodes
(recent articles with at least 5 words in title)
More Evidence
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities
🌐 365 Days
VR Related Evidence Matrix
- The oral health of adults with learning disabilities: A secondary analysis of the Adult Dental Health Survey 2009
- Diverse learners: learning disabilities and quality of life following mind-body and health education interventions for adults with neurofibromatosis
- Health inequalities for people with learning disabilities: why it matters and what emergency physicians need to know
- Disability Acceptance and Affirmation Among U.S. Adults With Learning Disabilities and ADHD
- Person-centred critical care for a person with learning disability and COVID-19: case study of positive risk taking
- Hospital admissions of school-age children with an intellectual disability: A population-based survey
- Design, Implementation and Evaluation of an Innovative Pilot Intervention to Improve the Family Quality of Life of Children with Specific Learning Disabilities-A Randomized Controlled Trial
- Disability-related inequalities in the prevalence of loneliness across the lifespan: trends from Australia, 2003 to 2020
- "He Stole My Meds to Get High:" The Mental Health and Well-Being of Women Abused by Intimate Partners and Their Disability Status
- Diet quality, diet-related factors, and disability status among male adults of reproductive age in the United States
- Indonesian nurses' awareness and application of reasonable adjustments when caring for people with intellectual disability and/or autism
- Assistive technology and specific learning disability: a case report
- Exploring the similarities and differences amongst service users with and without learning disabilities attending Saint Marys Sexual Assault Referral Centre
- Virtual reality experiential learning improved undergraduate students' knowledge and evaluation skills relating to assistive technology for older adults and individuals with disabilities
- Intellectual disabilities teaching for medical students: a scoping review
- Immigrant Origin and Disability Increase Risk for Anxiety Among Youth During COVID-19: The Role of Unmet Needs for Support in Distance Learning and Family Conflicts
- Oral Health Promotion among Individuals with Intellectual Disabilities: A Systematic Review
- Clinical characteristics of people with intellectual disability admitted to hospital with constipation: identifying possible specific high-risk factors
- A national screening for the prevalence and profile of disability types among Egyptian children aged 6-12 years: a community-based population study
- Widening disparities in the national prevalence of diabetes mellitus for people with disabilities in South Korea
- Patterns of Alcohol, Marijuana, and Tobacco Use Among U.S. Adolescents and Young Adults by Disability Status: 2015-2019
- Screening for depression: Psychometric properties of the German version of the Glasgow depression scale for people with a learning disability (individual and carer version)
- Accommodations for disabilities in dental education: A focus on technical standards and clinical skills
- Socioeconomic Characteristics, Lifestyle Behaviors, and Health Conditions Among Males of Reproductive Age With and Without Disabilities, NHANES 2013-2018
- Machine Learning-Based Prediction of Functional Disability: a Cohort Study of Japanese Older Adults in 2013-2019
- Estimating life expectancy and years of life lost for autistic people in the UK: a matched cohort study
- Accommodating Students with Disabilities: Fieldwork Educators' Experiences
- 'Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic
- Seroprevalence of Toxocariasis and Its Associated Risk Factors among Adult Population in Kavar District, Fars Province, South of Iran: A Cross-Sectional Community-Based Seroepidemiological Survey
- The disability-related education and training experiences of perinatal care providers in Ontario
- Parent-Reported Health-Related Quality of Life Outcomes and Impact on Family of Congenital Diaphragmatic Hernia Survivors After Repair: A Cross-Sectional Comparison to Healthy Controls
- Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
- Predicting adult-age mental health with childhood reading and math disability: do resilience and coping styles matter?
- How are students learning to care for people with disabilities?: exploring the curriculum design of a sample of disability electives offered by US health professions schools
- Examining the prevalence of nicotine vaping and association of major depressive episodes among adolescents and young adults by disability type in 2021
- Evaluation of a Student-Led Community-Based Veterinary Clinic for Disabled Low-Income Clients: A Case Study of the University of Florida PAWS Program
- Learning About Assistive Technology from High School
- Implementing and evaluating resources to support good maternity care for parents with learning disabilities: A qualitative feasibility study in England
- Disability status and robbery victimization in Peruvian villagers
- The role of physical activity in the association between disability and mortality among US older adults: a nationwide prospective cohort study
- Re-examining the association between the age of learning one is autistic and adult outcomes
- Preparing Healthcare Professionals to Care for Patients with Disabilities
- Special Education Representation Trends Vary by Language Status: Evidence of Underrepresentation in Tennessee
- Trends in mental health inequalities for people with disability, Australia 2003 to 2020
- Changes in E-Cigarette Use Among U.S. Adults, 2019-2021
- Comparison of Emergency Department Use Between Pregnant People With and Without Disabilities in Ontario, Canada
- A predictive model for depression in Chinese middle-aged and elderly people with physical disabilities
- Health and Well-Being at the Transition to Adulthood Among Individuals With Disabilities: An Analysis of the Panel Study of Income Dynamics
- Developing "Adulting for Health": Investigating the Health Needs of Neurodivergent Emerging Adults
- High-intensity acute exercise impacts motor learning in healthy older adults
- Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones
- A mixed methods evaluation of the effectiveness of an oral health training program for disability care workers in Burkina Faso
- Association of Disability Status and Type With Binge Drinking and Prescription Opioid Misuse Among Adults From a 3-State Sample
- Being human as praxis: for people with learning disabilities
- Developing Disability-Focused Pre-Health and Health Professions Curricula
- Internet-delivered psychological pain-management for young adults with chronic pain: An investigation of clinical trial data
- Health and Well-Being in Older Adults With a Surgically Closed or an Unrepaired Ventricular Septal Defect
- Diagnosed Developmental Disabilities in Children Aged 3-17 Years: United States, 2019-2021
- Aspects of Physical Activity and Quality of Life in Adults with Cerebral Palsy
- The effectiveness of sexual health and development education given to children with intellectual disabilities: A randomized controlled study
- Disability risk prediction model based on machine learning among Chinese healthy older adults: results from the China Health and Retirement Longitudinal Study
- Inequalities in Healthcare Access, Experience and Outcomes in Adults With Inflammatory Bowel Disease: A Scoping Review
- A systematic review of the impact of the COVID-19 pandemic on the mental health of adolescents and young people with disabilities aged 15-29 years
- Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?