- Diagnostic process prompts family reorientation and caregiving reorganisation, affecting routines, roles and long term family functioning.
- Responsive, coordinated services and family centred support are essential for improving family quality of life and continuity across service systems.
- Community understanding and social inclusion are critical for enhancing participation opportunities and reducing caregiver burden.
Healthcare (Basel). 2026 Oct 1;14(19):3233. doi: 10.3390/healthcare14193233.
ABSTRACT
BACKGROUND/OBJECTIVES: Family quality of life (FQOL) among families of children with autism spectrum disorder (ASD) is influenced by family life, services, and social experiences. Although research in Saudi Arabia has examined caregiver well-being and services, less is known about how families experience FQOL in everyday life. This study explored the experiences and perceptions of Saudi parents and caregivers of children with ASD.
METHODS: A qualitative descriptive design was used. Semi-structured interviews were conducted with 12 Saudi parents and caregivers of children with ASD. Data were analyzed using thematic analysis, with the FQOL framework used as a sensitizing conceptual lens.
RESULTS: Five themes were identified: (1) Diagnostic Experiences and Family Reorientation; (2) Caregiving and Family Reorganization; (3) Responsive Services and Family Quality of Life; (4) Family Adaptation Through Knowledge and Resilience; and (5) Community Understanding and Social Inclusion. Findings showed that FQOL was influenced by caregiving demands, responsive services, family adaptation, child progress, and opportunities for social participation.
CONCLUSIONS: FQOL is shaped by families’ changing experiences and needs over time. Supporting Saudi families requires responsive services, family-centered support, continuity across service systems, and more inclusive communities.
PMID:42881672 | DOI:10.3390/healthcare14193233
Share Evidence Blueprint
Save to Google Notes
Search Google Scholar
Save as PDF
⭐ My Revision List
