‘Join Us’: the vanguard phase of a disease-agnostic Australian research register

11/09/2026

AI Summary

Demonstrated feasibility of a national disease-agnostic digital research register supporting recruitment across Australia.
Enrolled 10,276 participants by 28 July 2025, mean age 51, 71% women, 21% non-English speakers, 3% Aboriginal or Torres Strait Islander.
Issued over 67,000 invitations to 143 studies across six states and territories, demonstrating support for diverse nationwide research.

Public Health Res Pract. 2026 Sep 24;36(3):PU25093. doi: 10.1071/PU25093.

ABSTRACT

OBJECTIVES: Recruitment to medical research projects is challenging. We evaluated the feasibility of supporting recruitment of human participants to Australian research studies using a national disease-agnostic research register.

METHODS: We undertook a quantitative longitudinal evaluation of participant enrolment and researcher utilisation of ‘Join Us’, a disease-agnostic research register, from its inception on 12 August 2020 to 28 July 2025. Participants were Australian adults (aged ≥18 years) and Australian research studies recruiting human participants. The main outcome measures included the numbers and demographics of community participants in ‘Join Us’, and the numbers and characteristics of the research studies supported.

RESULTS: ‘Join Us’ was established in 2020 with input from >50 organisations spanning consumer, academic, health service and disease interest groups, and including every state and territory. As of 28 July 2025, there were 10,276 participants enrolled, with a mean age of 51 years (range 18-95 years), 71% women, 21% reporting a non-English language spoken in the home and 3% identifying as Aboriginal or Torres Strait Islander. The health issues most frequently reported by participants were mental health problems (40%) and cardiovascular disease (36%), with 11% of participants reporting no health problems. The register has issued >67,000 invitations to participate in 143 research studies conducted by researchers based in six states and territories.

CONCLUSIONS: The ‘Join Us’ vanguard phase has demonstrated the feasibility of implementing a disease-agnostic digital research register and its potential for supporting recruitment to diverse studies nationwide. Scaling the register has significant potential to satisfy both community calls for better opportunities to participate in research and researcher needs for enhanced recruitment.

PMID:42722360 | DOI:10.1071/PU25093

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